In July this year, the Founder Trustee of the Pam Britton Trust for Dementia in Warwickshire, Tony Britton, and I had a joint paper published in the journal Dementia: the international journal of social research and practice. Here’s the press release about the paper.
The title of the plenary lecture I delivered at the Symposium on Ethics, Agency, and Personhood in Dementia at the University of Southern Denmark, Copenhagen, in August 2022, reflecting on how particular genres, narrative perspectives and tropes may or may not be productive for an enabling approach to the person with dementia and their care. Great to join Marlene Goldman, Ina Kjogx Pedersen and Peter Simonsen for a panel discussion, moderated by Cindie Maagaard, on the use of narrative medicine in dementia care.
An analysis produced by the Founder Trustee of the Pam Britton Trust for Dementia in Warwickshire and myself of the informal dementia care situation in England and beyond. Published in Dementia: the international journal of social research and practice, the piece critically reflects on contemporary policy issues related to dementia care and proposes actions for change. Thanks to funding from UK Research and Innovation this paper is available open access.
An invited guest lecture at the meeting of the Versus Arthritis Musculoskeletal Disorders Research Advisory Group, reflecting on arthritis as compared to dementia in cultural discourse, including representations in literary texts and focus in scientific and medical writing.
Giving a paper at the workshop Working Together: Collaboration beyond the Academy in Research in Dementia and Culture, London, November 23, 2018.
Sharing Tony Britton’s (Pam Britton Trust for Dementia) and my work towards changing dementia care – on how a neuropharmacologist-cum-health-humanist and a caregiver-turned-activist work together to achieve improved caregiver and patient support.
How do people with Alzheimer’s disease articulate their illness experience? Read more in my post to the King’s College London English Department blog about my new book, The Poetics and Politics of Alzheimer’s Disease Life-Writing, at https://blogs.kcl.ac.uk/english/2017/10/04/the-poetics-and-politics-of-alzheimers-disease-life-writing/#more-1132.