Tag Archives: caregiver

REMIND: Esperienze e memorie reali nella cura

Delighted to have been invited to contribute the concluding remarks, ‘L’esperienza dell’Alzheimer: una vista differenziata e collettiva’ [The full view of the lived experience of Alzheimer’s disease], to a study on ‘Real experiences and memories in care: Narrating dementia in Alzheimer’s disease’, led by Maria Giulia Marini at ISTUD, Milan. This study brings together three perspectives, that of people with a diagnosis of dementia, that of their family members and that of healthcare professionals. In bringing these voices together, this study and the book resulting from it establish the framework for an ‘ecosystem’ for the wellbeing of all involved, based on the principle that each party learns of the others’ anxieties, limitations, aspirations and hopes in the confrontation with dementia.

Annie Ernaux in the Poetics and Politics of Alzheimer’s Disease Life-Writing

Delighted to learn that Annie Ernaux has been awarded the Nobel Prize in Literature 2022 ‘for the courage and clinical acuity with which she uncovers the roots, estrangements and collective restraint of personal memory’. I discuss Ernaux’s writing about her mother with dementia in my first book, The Poetics and Politics of Alzheimer’s Disease Life-Writing (2017). The book is free to download thanks to Wellcome Trust funded open access.

Changing care

Giving a paper at the workshop Working Together: Collaboration beyond the Academy in Research in Dementia and Culture, London, November 23, 2018.

Sharing Tony Britton’s (Pam Britton Trust for Dementia) and my work towards changing dementia care – on how a neuropharmacologist-cum-health-humanist and a caregiver-turned-activist work together to achieve improved caregiver and patient support.

The Poetics and Politics of Alzheimer’s Disease Life-Writing

How do people with Alzheimer’s disease articulate their illness experience? Read more in my post to the King’s College London English Department blog about my new book, The Poetics and Politics of Alzheimer’s Disease Life-Writing, at https://blogs.kcl.ac.uk/english/2017/10/04/the-poetics-and-politics-of-alzheimers-disease-life-writing/#more-1132.