Tag Archives: care

Keynote at GSA Ireland

In December 2023, I was invited to deliver the opening keynote at the annual conference of the German Studies Association of Ireland, which focused on the Medical Humanities this year. My talk explored the nexus between the culturally and medically prized concept of narrative and a culturally prevalent account of ageing as decline and loss.

REMIND: Esperienze e memorie reali nella cura

Delighted to have been invited to contribute the concluding remarks, ‘L’esperienza dell’Alzheimer: una vista differenziata e collettiva’ [The full view of the lived experience of Alzheimer’s disease], to a study on ‘Real experiences and memories in care: Narrating dementia in Alzheimer’s disease’, led by Maria Giulia Marini at ISTUD, Milan. This study brings together three perspectives, that of people with a diagnosis of dementia, that of their family members and that of healthcare professionals. In bringing these voices together, this study and the book resulting from it establish the framework for an ‘ecosystem’ for the wellbeing of all involved, based on the principle that each party learns of the others’ anxieties, limitations, aspirations and hopes in the confrontation with dementia.

Literature and Dementia Care

The title of the plenary lecture I delivered at the Symposium on Ethics, Agency, and Personhood in Dementia at the University of Southern Denmark, Copenhagen, in August 2022, reflecting on how particular genres, narrative perspectives and tropes may or may not be productive for an enabling approach to the person with dementia and their care. Great to join Marlene Goldman, Ina Kjogx Pedersen and Peter Simonsen for a panel discussion, moderated by Cindie Maagaard, on the use of narrative medicine in dementia care.