My contribution to the Literature and Medicine collection by Anna Elsner and Monika Pietrzak-Franger, ‘Overcoming decline (in) narrative: Episodicity in dementia and ageing’, explores how the culturally and medically prized concept of narrative influences pessimism about ageing. The chapter takes three steps. It reviews seminal texts in the Medical Humanities to illustrate how signature characteristics of narrative dominate cultural and medical expectations of how people experience themselves and think about their lives. Taking dementia as a situation where anxieties about ageing and continuity of self are particularly acute, it illustrates the pressure emanating from narrativity for life as lived and life as narrated, revealing episodicity as a viable response to this two-fold pressure. In looking at the life histories of older people, gathered by in-depth unstructured interviews and published in book-format, this contribution demonstrates that episodicity is hugely relevant also for how older people retrospectively pitch their lives, suggesting that mid-life anxieties about living along a prescribed narrative arc into old age are perhaps exaggerated.
Category Archives: Health Humanities
Foundation Future Leaders 2024
Delighted to have been accepted on the Foundation Future Leaders programme 2024 organised by the Foundation of Science and Technology. The programme brings together a cohort of around 30 mid-career professionals, with ten representatives each from the research community, industry and the public sector, including the civil service.
Keynote at GSA Ireland
In December 2023, I was invited to deliver the opening keynote at the annual conference of the German Studies Association of Ireland, which focused on the Medical Humanities this year. My talk explored the nexus between the culturally and medically prized concept of narrative and a culturally prevalent account of ageing as decline and loss.
SAACY at Age UK
Delighted to have been invited to speak at the Age UK Influencing Division Briefing about the Policy Report, Shifting How We View the Ageing Process, which summarises the Themes for Actions and Next Steps explored during a Policy Lab held in the framework of my research programme on The Sciences of Ageing and the Culture of Youth, funded by a UKRI Future Leaders Fellowship.
SAACY at Centre for Ageing Better
Delighted to have been invited to speak at Ageing Better Headquarters about our Policy Report, Shifting How We View the Ageing Process. The Report summarises findings from the one-day workshop that explored the value, feasibility and acceptability of shifting how we view the ageing process. The Report’s goal is to achieve attitudinal change to ageing, by moving away from a narrative of disease and decline towards the idea that ageing is a lifelong process of change.
Shifting How We View the Ageing Process
As part of The Sciences of Ageing and the Culture of Youth, we had run a Policy Lab together with the Policy Institute at King’s in Autumn 2022. The one-day workshop had brought together academic researchers from a range of disciplines, practicing clinicians, people with lived experience and representatives from the care sector, charities and the policy world to explore how valuable, feasible and acceptable it would be to shift how we view the ageing process. Read the full Policy Report here.
REMIND: Esperienze e memorie reali nella cura
Delighted to have been invited to contribute the concluding remarks, ‘L’esperienza dell’Alzheimer: una vista differenziata e collettiva’ [The full view of the lived experience of Alzheimer’s disease], to a study on ‘Real experiences and memories in care: Narrating dementia in Alzheimer’s disease’, led by Maria Giulia Marini at ISTUD, Milan. This study brings together three perspectives, that of people with a diagnosis of dementia, that of their family members and that of healthcare professionals. In bringing these voices together, this study and the book resulting from it establish the framework for an ‘ecosystem’ for the wellbeing of all involved, based on the principle that each party learns of the others’ anxieties, limitations, aspirations and hopes in the confrontation with dementia.
Writing successful ageing?
My contribution to the Bloomsbury Handbook to Ageing in Contemporary Literature and Film (Bloomsbury, 2023; edited by Sarah Falcus, Heike Hartung and Raquel Medina) explores the connection between ageing and illness. ‘Writing successful ageing? The aches and pains of illness narrative and life review’ analyses how the expectations for older people created by the concept of successful ageing reveal themselves in prominent life writing. The chapter looks at the role of illness in older age in directing self-perceptions and self-representations of ageing as failure. It also considers different narrative forms and frames in life writing, the diary as compared to the life review, and their possibilities and limitations in articulating ageing as successful.
Making Ageing and Dementia Studies Matter outside the Academy
At the 8th Arts and Humanities Research Council Fellows Conference, one of the panels focused on ‘Developing careers in the arts and humanities’. I contributed with a presentation that explored tensions between research, and impact and engagement activities, based on my experiences of currently running a UKRI Future Leaders Fellowship funded research programme on ageing, The Sciences of Ageing and the Culture of Youth.
Grappling with the biological reality of ageing
In June 2023, I delivered an invited seminar in the School of Lifecourse and Population Health Sciences at King’s. Lively discussion about the barriers to accepting material changes of the body that come with ageing.
